Irsa

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Centers of ExcellenceRESOURCES

This is a resource list of the major organizations that provide information to those seeking support and educational information. From their web sites you can obtain many more web listings that may be of value to you.

COMPREHENSIVE ORGANIZATIONS:

  • ABTA -- www.abta.org
    American Brain Tumor Association exists to eliminate brain tumors and to meet the needs of brain tumor patients and their families. The American Brain Tumor Association has their complete Primer on Brain Tumors on their website. If you have just been diagnosed, we recommend that you review this primer.

  • CancerTreatment.net -- www.cancertreatment.net
    CancerTreatment.net is a comprehensive resource for information about treatment for different types of cancer.

  • NBTF -- www.braintumor.org
    National Brain Tumor Association is an organization dedicated to supporting people whose lives have been affected by brain tumors by providing support and education for patients, their families and friends and raising funds for research to treat and cure brain tumors.

  • NORD -- www.rarediseases.org
    The National Organization for Rare Disorders (NORD) maintains several databases of information on rare diseases.

  • NINDS -- www.ninds.nih.gov
    National Institute of Neurological Disorders and Stroke is one of the eight agencies that comprise the US Department of Health and Human Services which provides research and information on the brain and nervous system.

  • PUBMED -- www.ncbi.nlm.nih.gov/entrez/query.fcgi
    National Library of Medicine's website to research journals and medical literature by topics.

    TBTS -- www.tbts.org
    The Brain Tumor Society disseminates educational information and provides access to psycho-social support; and raises funds to advance carefully selected scientific research projects, improve clinical care and find a cure.

SPECIFIC ORGANIZATIONS:

  • ANA -- www.anausa.org
    Acoustic Neuroma Association provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves.

  • IETF -- www.essentialtremor.org
    International Essential Tremor Foundation provides information and support to people who have been diagnosed with essential tremor.

  • TNA -- www.tna-support.org
    Trigeminal Neuralgia Association provides information to those who have been affected by the pain of trigeminal neuralgia, as patients or as family members of a patient.

    PTNA -- www.pituitary.com
    Pituitary Tumor Network Association disseminates information to the medical community, pituitary patients and their families on early detection, symptoms, treatments and resources available to patients with pituitary tumors and disorders.
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